A couple of us attended a meeting the other day in which one of the presentations promoted a pilot scheme to give people access to their GP records online. It sounded great… until we started to think through the potential for abuse. Our questions about security were acknowledged as valid, especially in light of recent failures in the massive NHS IT system developments. But there had clearly been little thought about issues closer to home.
Posted in Age UK London Blog
Tagged carers, dementia, GP, hackers, health, inequality, nhs, older, Older people, privacy, records
I was chuffed recently to discover that people read and appreciate my blogs on this site – so I’m inspired to do an update of a subject I spoke about in July. The fact is that people with learning disabilities are living longer but sadly many are developing dementia as they age – as many as 54 per cent of people with Downs aged 60-65 have dementia. So I started asking questions about social care and health preparations for this “new” client group.
The banks are proclaiming that they have “saved cheques” and all is well with the world. This is one of the great cons of our time, in my opinion. Who is going to accept a cheque in a shop or garage etc with no guarantee of payment? The abolition of cheque guarantee through your card is effectively the end of cheques.
The restriction of choice in personal budgets is unfair, unethical and potentially unlawful. But it is happening in a number of ways.
Southwark Council have decreed that SUs can only use council-managed personal budgets for services contracted by the council. If people want to use a service with which the council does not have a contract, they have to manage the budget themselves. This effectively means that, for instance, when voluntary sector homecare and day care contracts end, only those older people who are able and willing to take and manage a direct payment can access our services.
I believe this to be unethical and have asked the Public Law Project whether it is also unlawful. Any knowledge or views would be gratefully received.
Day care centres are under attack. They are viewed by some local authorities as an outdated, expensive form of care. But the people who attend our day care in Lewisham and Southwark, and their carers, tell me they love it, they are happier, it improves their quality of life and their carers are able to have a break and / or continue working.
For myself, I know that I subsist on toast and other comfort foods when I eat alone. I also know that I get bored and boring very quickly if I don’t have anything outside the house to talk about.
I’ve heard it said that homecare services provide friendship and company and certainly our own homecare workers try to do this and have very good relationships with their Service Users. But time and cost constraints mean they are in and out of people’s homes in a short space of time with a number of critical tasks to complete in the time allocated. Continue reading